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 Setup Guide: Memory Book and Palm ?  X
Floppy disk How I Set Up My Memory Book and My Palm
Back to My Brain, Version 2.0

After my brain injury, my memory for new things stopped working the way it used to. My therapist, Ms. McCloskey, said: "Then we'll build you one outside your head." This page is how I did it. People in my support group asked me to write it down, so I did. Twice.

This is what works for me. Your brain injury is different from mine, so please work out your own system with your therapist. Take this page to her and say, "Something like this."

The short version: the Palm tells me WHEN. The notebook tells me WHAT HAPPENED. I use both every day. I'll explain why at the end.


 Part 1: The Memory Book

The book. A small six-ring planner, about the size of a paperback, in a black zipper case. It fits in the left cargo pocket of my khakis. It is always in the left cargo pocket, or in the blue bowl by the front door. Nowhere else. I'm on my fourth one since 1996.

The tabs. Nine colored tabs, in this order. The order never changes.

1. TODAY (red tab)
One page per day. The top half is the schedule, hour by hour from 7 a.m. to 9 p.m. Below that, "Things to do today" with check boxes. On the back is the log: every time something happens, I write the time and what happened. This is the most important tab. I fill out tomorrow's page every night before bed.
2. CALENDAR (orange tab)
A month on two pages, for the big picture: work days, therapy, birthdays, the support group, when bills are due. The Palm has all of this too, but I like to see the whole month at once.
3. LIST (yellow tab)
The master list of things I need to do sometime, not today. Each night I move a few of them to tomorrow's TODAY page. When one is done, I cross it out with a single line, so I can still read it and know it got done.
4. PEOPLE (green tab)
One entry per person I meet more than once: name, where I know them from, what they look like, and something we talked about. For example: Glenn Duong. Branch manager at the library. Glasses, bow tie on Fridays. Two kids, plays tennis. Likes to be called Glenn, not Mr. Duong. Before I go anywhere, I read the people I'm likely to see. It saves me a lot of embarrassment.
5. CALLS (blue tab)
Every phone call: date, time, who, what they said, and what I promised. If I don't write down what I promised, I won't do it, and people will think I don't care. I care. I just won't remember.
6. HOW-TO (purple tab)
Step-by-step lists for things I do, but not every day. How to check in a book with a hold on it. How to use the bank machine. How to set the VCR. How to make Terri's chicken. How to reset the circuit breaker. Every step numbered. I add a new one any time I have to ask someone how to do something twice.
7. MAPS (pink tab)
Directions to every place I go, written as turns and landmarks: "Left at the gas station, two lights, right at the church." Also the bus route to work and a copy of the bus schedule, since I don't drive on busy roads anymore.
8. MEDICAL (white tab)
My doctors and therapists, my medicine list, my allergies, and a page of questions for my next appointment. I write the questions down as I think of them, all month. Then I read them off at the appointment, and I write down the answers right there.
9. JOURNAL (gray tab)
Two lines a day: how I felt, and one good thing. On bad days I read back through it. It shows me I'm improving even when it doesn't feel like it.
Inside the back cover
A card: "I have a brain injury. If I seem confused or lost, please be patient. Please call my wife, Terri. Her number is below." And a note that says: IF FOUND, PLEASE RETURN. REWARD. I mean it about the reward.

 A Real Page: One Tuesday
Here is what one of my TODAY pages looked like earlier this month, copied out, so you can see how it works.

TUESDAY, SEPTEMBER 7, 1999

7:00  Up. Vitamins. Breakfast.
8:00  CHECK BOOK (alarm)
8:25  Bus to work
9:00  Work, 9 to 1
1:15  Lunch at home
2:00  NAP
3:30  Walk around the block
5:00  CHECK BOOK (alarm)
6:00  Supper
7:00  Support group, hospital, Terri drives
9:00  Review with Terri. Tomorrow's page.

THINGS TO DO TODAY
[X] Call pharmacy about refill
[X] Buy stamps
[X] Return Terri's video
[  ] Write back to the man in Ohio (moved to Wed.)

LOG
9:40  Glenn asked me to shelve new mysteries. Done 11:30.
12:15 Terri called. Get milk. Got it 1:05.
1:10  Pharmacy: refill ready Thursday.
7:45  Group. New man, Gary, car crash in June.
      Gave him my e-mail. Added to PEOPLE.

You can see I didn't finish one thing. That's fine. It moved to Wednesday. The book doesn't mind, and I've learned not to either.

 Part 2: The Palm III

Terri gave me a Palm III for Christmas 1998. It is about the size of a deck of cards and runs on two AAA batteries. I was afraid I couldn't learn it. It took me about two weeks, with the instruction book open on the kitchen table and Terri answering the same questions more than once. Here is how I set mine up, program by program.

Date Book. Every appointment goes in, with an alarm set for 15 minutes before. That is the most important part: it beeps. My notebook can't beep. Things that happen every week or every month (work, the support group on the first Tuesday) are set to repeat, so I only had to put them in once. I set the alarm sound to the loudest one.

To Do List. I use it for short things with a due date, like "pay power bill" or "Terri's birthday card." I sort them into three categories: Home, Work and Errands. I set it to show the due dates, so I can see what's late. The longer list stays in my notebook.

Address Book. Every phone number, and in the note for each person, the same information as my PEOPLE tab: where I know them from and what they look like. If I'm at the library and someone says hello, I can look them up in my pocket.

Memo Pad. My favorite. Some of my memos:

  • WHERE I PARKED (when Terri and I go somewhere and I drive the short way)
  • THINGS I LENT (books, a drill, a casserole dish)
  • QUESTIONS FOR DR. LANHAM
  • GIFT IDEAS FOR TERRI (very important)
  • MOVIES I'VE ALREADY SEEN (so I stop renting the same ones)

HotSync every night. Before bed, I put the Palm in its cradle and press the button, and it copies everything onto our home computer. If I lose the Palm, or the batteries die, nothing is lost. I have lost it once, in the couch, for two days. Nothing was lost but my temper.

Graffiti. That's the special alphabet you write on the Palm with the stylus. It's a little different from regular printing. I kept the cheat sheet sticker on the back for the first month. Now I don't need it most days.

Batteries. Two spare AAA batteries live in the blue bowl by the door. When the battery warning comes up, I change them that day. Not tomorrow.


 Part 3: Why Both, and the Rules

Why both? The Palm reminds me. It beeps at the right time and it holds a lot in a small space. The notebook is where I think and where I keep track of what happened. Writing by hand also helps me remember a little better. I'll say it again: the Palm tells me WHEN. The notebook tells me WHAT HAPPENED. Before the Palm, my alarm watch did the beeping. I still wear the watch, as a backup for the backup.

My rules:

  1. One book. Not a book and some sticky notes and the back of an envelope. One book.
  2. Same place, always. Left cargo pocket, or the blue bowl.
  3. Write it down NOW. Not in a minute. In a minute it's gone.
  4. Check it when the alarm goes off. 8, 12, 3, 5 and 9.
  5. If it's not in the book, it didn't happen. Terri and I agreed on this, and it has ended a lot of arguments.
  6. Review every night with somebody you trust. Fill out tomorrow.
  7. Back it up. HotSync the Palm every night. Photocopy the PEOPLE, HOW-TO and MEDICAL tabs once a month.
  8. Give it time. It took me about three months before checking the book was a habit and not a chore. Ms. McCloskey said that was normal. She said it twice.

If you're setting up a memory book for yourself or someone you love, and you'd like to ask me something, write me at [email protected]. I'll put you in my CALLS tab and I will write back.


Back to My Brain, Version 2.0
Last updated Saturday, September 25, 1999. Checked twice.