On Mom's kitchen table, next to the sugar bowl, there's a fat blue three-ring binder with tabs. It's the most important thing in her house after Mom. Everybody who helps her knows where it is: Leona, the Committee, Mrs. Kinser, Bernard, the home health nurse, and the ambulance crew, who have used it twice. I keep a copy at my house in Columbus, and Randy has the first two sections in Texas.
Here's what's in it, as a checklist. Print it out, put it in a binder, and fill it in a section at a time. It took me three weekends to do Mom's. Update it every visit. A notebook with last year's medicines in it is worse than no notebook.
TAB 1: IN AN EMERGENCY (the first page anybody sees)
[ ] Full name, birth date, address
[ ] Her diagnoses, in plain words (Mom's: congestive heart failure, diabetes)
[ ] Allergies to medicines
[ ] Which hospital she wants to go to
[ ] Who to call, in order, with their phone numbers: me, Barry, Randy, Leona
[ ] Her doctors' names and numbers
[ ] Where the health care power of attorney and living will are (copies are in the front pocket of the binder)
[ ] A note: "Take this notebook to the hospital with her."
TAB 2: MEDICINES
[ ] Every medicine she takes, prescription or not, including vitamins
[ ] For each one: the name, the dose, what it's for, what time of day, which doctor ordered it, and when she started it
[ ] Her pharmacy's name and number
[ ] A list of medicines she's stopped, and why
[ ] Once a year, put every bottle in the house in a grocery sack and take it to the doctor. Ask, "Should she still be taking all of these?"
TAB 3: DAILY LOG (kept on the kitchen table, filled in by Mom)
[ ] A page a day with lines for her blood sugar readings and the times
[ ] A line for the scale. Her heart doctor wants it checked every morning, because a quick gain can mean fluid building up. He told her which change means call him that day, and it's written at the top of the page.
[ ] Swollen ankles? Short of breath? Check yes or no.
[ ] Medicines taken: check boxes for morning, noon, supper and bedtime
[ ] How she slept, how she ate, and anything else she wants to say. (Mom's comments are sometimes directed at me. I deserve most of them.)
TAB 4: DOCTORS AND APPOINTMENTS
[ ] A calendar with every appointment for the next three months
[ ] A page for each appointment: questions to ask (written ahead of time), and what the doctor said (written right there in the office)
[ ] Who's driving her
[ ] Test results, if the doctor will give you copies (ask; they usually will)
[ ] Hospital discharge papers
TAB 5: HELP AND SERVICES
[ ] Area Agency on Aging: name of the person you talked to and the number
[ ] Meals on Wheels: days, time, driver's name
[ ] Medical alarm company: number, account number, and how to test the button
[ ] Care manager, home health agency, aide: names, numbers, schedule
[ ] Neighbor with the key
[ ] Church friends and her pastor
[ ] Handyman, plumber, the man who plows the driveway, the boy who mows
[ ] Her hairdresser (do not underestimate the hairdresser; she sees Mom every week and notices everything)
TAB 6: INSURANCE
[ ] Copies of the Medicare card and any supplemental policy card, front and back
[ ] The supplemental policy's phone number and what it covers
[ ] A folder for Medicare statements and bills, with "paid" and the date written on each one (Randy's department)
TAB 7: WHERE THE PAPERS ARE (just the locations, not the papers)
[ ] Health care power of attorney
[ ] Living will
[ ] Financial power of attorney
[ ] Will, and the lawyer's name
[ ] Deed to the house
[ ] Bank accounts and who's on them
[ ] Safe deposit box, and where the key is
[ ] Life insurance policies
[ ] Cemetery plot and her wishes for the service. Yes, ask. She'll have opinions. Mom's has the hymns picked out.
TAB 8: THE HOSPITAL BAG (packed and in the hall closet)
[ ] Nightgown, robe, slippers with rubber soles
[ ] Glasses and a spare pair, hearing aid and batteries
[ ] A copy of the medicine list and of Tab 1
[ ] A little money for the vending machine, and a roll of quarters for the pay phone
[ ] Her crossword book and a pen
TAB 9: THE HOUSE
[ ] Where the water shutoff and the fuse box are
[ ] When the furnace was last serviced
[ ] Smoke detector batteries (change them every fall)
[ ] Spare key locations (and who has one)
This one's taped inside the front cover. I go down it every Saturday morning while Mom's having her coffee.
[ ] Refill the weekly pill organizer, and count what's left in the bottles
[ ] Read the daily log for the last two weeks
[ ] Check the refrigerator for spoiled food and the cabinets for groceries
[ ] Sort the mail. Pay or set aside the bills. Throw away the sweepstakes.
[ ] Test the alarm button (call the company first and tell them it's a test)
[ ] Walk the house for things to trip on: throw rugs, cords, shoes on the stairs
[ ] Check the porch steps and the railing
[ ] Light bulbs out? Smoke detector chirping?
[ ] Laundry and clean sheets
[ ] Talk to Leona over the fence
[ ] Write down questions for the next doctor visit
[ ] Update the medicine list if anything changed
[ ] Sit down with Mom and do something that isn't a chore. A crossword. A soap opera. A walk to the mailbox. This is the one that matters.